The Morrison Government will invest $65 million to establish the first dedicated Cystic Fibrosis Specialist Unit, offering world-class care for those affected by the condition and new hope of finding a cure.

The Specialist Unit will provide treatment with state-of-the-art equipment, research and diagnostic facilities as a key part of the Westmead Health and Education Precinct in Sydney.

Cystic Fibrosis is the most common chronic, life-limiting genetic condition affecting young Australians today. Every four days a baby is born with the disease.

Fortunately, with advancements in treatment and medication, patients are living longer, which is why a specific adult centre is required. The number of adults with cystic fibrosis has increased by 1,000 in the past 15 years.

The Cystic Fibrosis unit will be co-located with the hospital’s respiratory unit and contain:

A 16-bed inpatient unit with single rooms, including four isolation rooms

  • Specialist research zone
  • New consultation rooms
  • New work spaces for clinical staff
  • An upgraded outpatient service including day stay rooms for procedures and outpatient physiotherapy and respiratory testing.

  • This latest investment follows the listing of two medications for Cystic Fibrosis on the PBS over the last two years. Orkambi® in 2018, that otherwise would cost patients $250,000 annually and Kalydeco® in 2017, which would cost patients $300,000 a year. These important medications now cost as little as $6.50 a script.

    The Morrison Government’s ‘Plan for Strengthening Australia’s World Class Health System’ will guarantee Medicare, deliver record bulk billing, an additional $31 billion for hospitals over the next five year agreement, $40 billion for new medicines and research backed by our $20 billion Medical Research Future Fund. More information is available: